THE INVISIBLE SYMPTOM OF CIDP ARE ABOUT THE SAME AS MS. WE HAVE NO SUPPORT SOCIETY SO I SWING OVER TO THE MS SOCIETY FOR HELP WITH DEPRESSION AND COUNSELING. THIS IS VERY HELPFUL INFORMATION!
I URGE EVERYONE TO WATCH THESE VIDEOS ABOUT THE SYMPTOMS WE SUFFER BUT NO SEES OR UNDERSTANDS:
Thanks Estaban. I have all those symptoms and get so frustrated when people don’t understand. Now that I have been diagnosed and am having treatments, I no longer look like death warmed over and can walk again with assistance but people are constantly saying you look so healthy how can you be sick. Wish they could live in my body for 24 hours and they would understand why I need naps everyday and why I can’t bend over to pick up anything without falling over. Sorry for the ranting, just gets old daily in the office.
Thank you so much for your suggestion to watch these videos, Estaban. MS and CIDP do have so many similarities but I never thought to look at the MS sites for possible ideas of how to deal with CIDP. These invisible symptoms seem so obvious to me and I feel that everyone around me can see this going on with me, when few people see them. I'm a teacher and work full-time, which is quite exhausting when trying to deal with CIDP. I think the exhaustion is the hardest part for me, personally. It really helps to see that I am not the only one feeling the symptoms that go with CIDP, and to find ways of coping.