Exercise and stretching causing relapse?

I know there has been lots of discussion on exercise, but nothing exactly what I'm looking for. I was diagnosed in 2001 and have a mild case. I'm not disabled in any way.

My problem is that if I do stretches or anything repetitive such as climbing hills, I will be weak and fatigued in 24 to 48 hours. It will usually pass within a few days. This week, I did some hamstring stretches. Bad idea! I feel weak all over, from my face down--not just in the area I stretched.

On another post, someone said that overdoing it can lead to a relapse, but I think of a relapse as an autoimmune attack--not fatigue from activity. What is so mysterious to me is why I should feel like I'm in a relapse with widespread weakness--not just in a particular muscle group.

So my questions are: What is going on that is triggering an all-over weakness? And, am I harming my nerves and muscles by overworking them or is just a matter of taking longer to return to "normal"? I need to do more than just walk. I can deal with a few days of weakness if I feel I'm not doing damage.

Thanks!

My neurologist recommended my physical therapist stretch out muscle passively. Simply they stretch the muscle for me to minimize the nerve flare by not contracting the other muscles.

Robert, did your doctor tell you that a nerve flare would lead to damage or just make recovery longer?


I wont say that I have over-exercised my muscles, I will just say that I overdid it and caused myself to be extremely tired. Emergency situations occur. I had no choice some of the time when I fatiqued my muscles. The only way to avoid this feeling is to set a time limit and a definite pattern of how you will use your muscles. Over the years, I have developed a sense of when to stop and rest. Rest is one of the most important "medicines" to treat this disease. I exercise 3 times a week for 45 minutes but I do them in a swimming pool of nice warm water, I don't over-exercise there. It is relaxing as well Ethel



Ethel said:


I wont say that I have over-exercised my muscles, I will just say that I overdid it and caused myself to be extremely tired. Emergency situations occur. I had no choice some of the time when I fatiqued my muscles. The only way to avoid this feeling is to set a time limit and a definite pattern of how you will use your muscles. Over the years, I have developed a sense of when to stop and rest. Rest is one of the most important "medicines" to treat this disease. I exercise 3 times a week for 45 minutes but I do them in a swimming pool of nice warm water, I don't over-exercise there. It is relaxing as well Ethel

The way I understand this disease is that it originates in the anterior horn of the spinal column, not in peripheral muscles. Our sensory impulses arrive at the posterior horn of the spinal column, then these translated sensory messages go up to the brain , and/or to the anterior horn (motor nerve junctions) to activate motor nerves with action-potentials to the muscles.

The anterior horn activates a great number of nerves coming out of different locations in the spinal column, however if you have lesions in the anterior horn or spinal nerves (a high percentage of demylinated axons) then whole groups of muscles can be affected to some degree or they will fail completely (my knee buckles, etc). This is also/usually felt at weakness. If the posterior horn is affected by CIDP, then other sensory problem can occur... balance,lack of hot or cold sensation, etc..

Since most movements are a combination of skeletal muscles, and any part of the movement that is not coordinated with other muscles, or if only partly coordinated, then dysfunction may results and this causes pain and inflammation at the dysfunctional site.

However, I don't think the inflammation at the muscle site is caused directly by CIDP. The inflammation of CIDP ( I may be wrong about this) takes place only at the spinal area (in the anterior horn, which is a column of grey matter running the entire length of the column) and the large nerve fibers coming directly out of the horn/spinal column.

From what I've read, the wider areas of the spinal column are affected by CIDP the most; these being the cervical and lumbar sacral areas. When/if the thoracic spinal area is affected by CIDP then breathing, heart function, diaphragm and other organs may be affected.

I'm of the opinion that exercise can't do harm. I exercise constantly (might even say extreme), so when my phrenic nerve fails to receive the proper action-potentials from my thoracic spinal area, when I am in relapse, I have compensated with stronger muscles, Having built-up stronger diaphragm strength I am then better able to work my way through phrenic nerve dysfunction, However, if too many axons are demylinated, then obtaining a full and deep breath fails, no matter what state of strength I possess. This is also called shortness of breath. The point being is that the dysfunction is not in the phrenic nerve itself, but at nerve root (anterior horn) of the thoracic spinal column.

Please correct me if any part of this is incorrect. My thinking is that if/when nerves are turned off at the source (spine), only then do the nerves, muscles and movement deteriorate. From this one might extrapolate and come to realize the possible reasons for so many and varied problems of CIDP.

E

Thanks, MissJ. I think you're right about overuse of the nerves and muscles. I hope you get a good PT. The last one I had wasn't sure what to do with me. I have a 90-year-old friend who has a personal trainer! Wish I could do that. The problem with passive exercise is that I have osteoporosis and need to do some weight-bearing things. About five years ago, I used ankle weights to do some leg lifts and had no problems....and I reversed my osteoporosis. I'm not sure I can do that again, but may try to build up very slowly. And that takes me back to my question: Can I build up slowly? Can those nerves be conditioned to take on more strenuous exercise?

By the way, I just finished a 90-day supply of R-Lipoic Acid and NAC. No help that I can tell. But I have been in a very long remission and even when I'm not, my CIDP is mild. It might be beneficial in someone more afflicted than I am.