I recently went to my neuro . I ask about home health and something to stir the rashes on my shoulders between weekly IVIG . She changed my meds and refered me to home health. My insurance approved it and is sending my medication out this week for a infusion next week. This will be so nice . I am setting my chair up infront of a window with a view.
I'm so glad, Robert. I hope it makes you feel better soon.
I have 42 hours, in six days each month of hospital-bed infusions. My view, Haleakala, a 10,000 foot-high, dormant volcano, the Pacific Ocean and central Maui. Lucky in a way, I guess, but if I could not have CIDP, I'd settle for a view of a brick wall in the worst urban city environment... maybe Detroit.
Good luck, Robert!
Esteban to be subject to this disease is a sentence . It doesn’t matter really how good or bad the view is only that we remain on the top side of six foot under . ; ) I too would give allot to not have to deal with this. My infusion center fouled up with my insurance providers pharmacy so the called and said yesterday’s infusion cancelled . I am glad we had been working on home health.
I'm getting 40 grams/day on 3 consecutive days. I want a slam-dunk dosage instead of seperated days, i.e. M-W-F. The last time I tried 3 consecutivedays, at a fast infusion rate, I was stricken with autonomic hyperflexia and ended up in the hospoital for 5 days.
Yes, seven hours, but I get breakfast, lunch and dinner, and hourly hula shows from the Tahitian nurses.
Also, I want to add that swimming for an hour yesterday listed me, once again, out of weakness, stiffness and some sensory dysfunctions,
mdolich said:
WOW, how much immunoglobulin you getting that takes that long?? I get 80g every three weeks, and it only takes four hours to infuse it. I mean that's 7 hours each time you go in for your infusion.
estaban said:I have 42 hours, in six days each month of hospital-bed infusions. My view, Haleakala, a 10,000 foot-high, dormant volcano, the Pacific Ocean and central Maui. Lucky in a way, I guess, but if I could not have CIDP, I'd settle for a view of a brick wall in the worst urban city environment... maybe Detroit.
Good luck, Robert!
The infusion center I used to go to seldom started on time and had to restart equipment allot so there was allot of down time. I I am hopeful that the home health will
Be able to start and keep it going huero says a max rate of 100. So I’m not sure what it will really take.