I have been up many nights myself walking and stretching. My dr presribed gabapentin and elavil together. It does seem to help, but I think it loses its effectiveness fast and the dosage is having to be increased all the time. Really the best for me seems to be walking on a treadmill every day at least 1 mile, stretching, massaging the skin and a moderate dose of meds. Hope it helps!
Hi Guys, the leg cramps well thats the thing, I get the cramps in my sides and my chest right dead centre!!!! cant breathe when that happens thank God it only lasts a few minutes.....I was on gabapentin and it worked really good but the Doctor changed the meds to cymbaltia and they make me very ill....so they tell me it due to stress and not enough rest...I believe that the stress causes us alot of grief serious grief!!!!! but we are walking and talking so these small residues are ok good luck to us .
Why did your doctor take you off of gabapentin? Stress worsens my leg pain, but if I take a few deep breaths and try to calm down the symptoms go away and I am left with the every day pain I have become accustomed to. It is like the chicken and the egg which came first the stress or the pain. I do know if I can find something to smile about everything seems a little better. Peace nancy
brenda said:
Hi Guys, the leg cramps well thats the thing, I get the cramps in my sides and my chest right dead centre!!!! cant breathe when that happens thank God it only lasts a few minutes.....I was on gabapentin and it worked really good but the Doctor changed the meds to cymbaltia and they make me very ill....so they tell me it due to stress and not enough rest...I believe that the stress causes us alot of grief serious grief!!!!! but we are walking and talking so these small residues are ok good luck to us .
hey Nancy the reason Im not on gabapentin is that I have a new nuero guy and he said cymbaltia why I dont know..my thought is if its not broken dont fix it but thats ok.....and as for stress what a wonderful world it would be if there was none lol and I agree every day that I wake up is a great day from where I was to now yes life is good
brenda said:
Hi Guys, the leg cramps well thats the thing, I get the cramps in my sides and my chest right dead centre!!!! cant breathe when that happens thank God it only lasts a few minutes.....I was on gabapentin and it worked really good but the Doctor changed the meds to cymbaltia and they make me very ill....so they tell me it due to stress and not enough rest...I believe that the stress causes us alot of grief serious grief!!!!! but we are walking and talking so these small residues are ok good luck to us .
Better late than never...8-( I have the worst feelings in my feet and legs at night, never fails my right foot is as cold as a block of ice. I either have the feeling of "bugs" under my skin or I have twitching or prickly feelings from ankle to hip. My feet will start to itch and I just about go crazy! I take Nocoro 5-325 and Ultram 50 mg before bed for the pain, I honestly don't feel like they do anything for me. I received an electric throw for christmas and that seems to help. I also try to massage my feet each night, that seems to help with the pain. Rachel, I surely hope out of all of these responses you are able to glean some ideas and put to use for what you have going on. Best of luck to you and everyone who posted. Char
Hey Char68 how long have you been on the ultram......I was put on it in the summer and I find that it dosent do any thing for me at all....I dont take them most of the time cause they really dont do any thing..is your right side your weaker side ...mine is the left and that side is the one that has most of the cramps and pain...hope we can find something that can help
Char68 said:
Better late than never...8-( I have the worst feelings in my feet and legs at night, never fails my right foot is as cold as a block of ice. I either have the feeling of "bugs" under my skin or I have twitching or prickly feelings from ankle to hip. My feet will start to itch and I just about go crazy! I take Nocoro 5-325 and Ultram 50 mg before bed for the pain, I honestly don't feel like they do anything for me. I received an electric throw for christmas and that seems to help. I also try to massage my feet each night, that seems to help with the pain. Rachel, I surely hope out of all of these responses you are able to glean some ideas and put to use for what you have going on. Best of luck to you and everyone who posted. Char
One word …Amitriptyline ! It’s the only thing that works … for me.
Laurie
Brenda, I've been on Ultram for over 2 yrs now and they aren't doing anything anymore either. I'm also noticing the Nocoro only helps me sleep but doesn't help with the pain. My right side is worse than my left. The EMG says that my arms are worse than my legs but I beg to differ with that. I pray each and everyone of us finds relief and soon. My throw and massages and a couple of pain pills to help me slees seem todo the trick for me for the time being...UGHH
I hear ya....but they dont even help with sleeping I have to take the muscle relaxer cause the cramps are so strong at night...and not just the legs its my left side and my chest ....some nights I cant breathe the cramp gets so bad and you can feel the muscle its like a baseball and it can take anywere from 5 minutes to 20 minutes to go away.....so I take the relaxers to help but they still come when and were they want....UGHH is right but we still are here lol
Char68 said:
Brenda, I've been on Ultram for over 2 yrs now and they aren't doing anything anymore either. I'm also noticing the Nocoro only helps me sleep but doesn't help with the pain. My right side is worse than my left. The EMG says that my arms are worse than my legs but I beg to differ with that. I pray each and everyone of us finds relief and soon. My throw and massages and a couple of pain pills to help me slees seem todo the trick for me for the time being...UGHH
I have not asked for any xanex yet but I am about to ask my doc for some so I can sleep through it. As for right now I take a couple of Norco. Do you get any cramps in your calf's like savere charlie horses???
Visited my neuro last saturday and complained about leg pain and other common discomforts especially at night. The doctor gave me LAGAFLEX 3 x a day for 10 days only. Works for me.
Again, I take Merepax each night. It is a med for Parkinson’s disease but seems to calm my restless leg syndrome which I had prior to CIDP. This is in addition to Restorill and Vimpat which is a brand new pain pill for nerve disorder.
I had problems with cramps, and my doctor prescribed Requip. It takes a couple of weeks to really kick in, but then works pretty well.
Bill
Yes Pauline, they are always in my calves!
Pauline said:
I have not asked for any xanex yet but I am about to ask my doc for some so I can sleep through it. As for right now I take a couple of Norco. Do you get any cramps in your calf's like savere charlie horses???
I started gabapentin last week 600mg. for my leg pain and it seems to be working, although I may have to up the dose to 1200mg. I just want to get off these darn T4's. Gary
I am on 1800mg of gabapentin for nerve pain and Tramadol for leg ache. It’s working pretty well without the spacey feeling of codeine or Oxy.
This one is a Cort, and I've had a number of guitars, including Yamaha and Washburn. Washburn aren't made like they used to be, but I did find one I loved, it was an Arte Luthiue, twelve string. Unfortunately when my wife and I last moved five years ago she forgot to lock the car door and when I when to get it, it was gone. Ripped off!! Gary
Rachel, Sorry about the guitar talk. When that happens to me (night leg pain) I take 0.5mg. of Lorazepam and can sleep like a baby. I don't take it every night of course but as needed. Gary
I recently got off of gaberpentin but I take ropinirole (requip) for my restless legs syndrome but now I'm having it during the day all over my body and when it's time to go to bed I can't because it's still there. I'm hesitant to take the ropinirole during the day because of the sleep side effects.
I'm thinking I'm having this because I went off the gaberpentin but it was not working on my nerve pain and causing other problems for me. Does anyone have any other ideas? I am realizing maybe I need to quit my 3 cups of coffee now. Is there anything else?
Still taking lyrica and other pain meds for 2 years and never really help much with the spasms and radiating pain. Presently on medical marijuana and helps with the pain and help me sleep. I don’t smoke it.I vape it. At least my liver is safe from those pain meds.