A question to my fellow CMTs, starting a few months ago if I laid down for a nap I would have any one of my hands or feet, or all four just “jump”. you know the sensation like you just wake from a dream of falling and your body does that “startle jump”?
This happens before I have fallen asleep and it kinda freaks me out. I used to have what I called “zaps” in my feet if I was sitting too long, like someone scuffed across a carpet and touched my foot somewhere, and obviously i would jerk my foot in response.
This new thing has absolutely no warning, no sensation, no pain, just one second lying peacefully in bed and my hand will jump into the air, and drop. It’s happened to both hands, both feet, or all at once.
I was diagnosed last year at 47 years old, so I’ve done well, living with the weird symptoms that slow onset CMT can do. But the last 6 months it feels like somebody kicked over the first domino and I’ve been on a roller coaster ever since.
So after all my blabbing, has anyone else had this happen to them?
Thanks and have a great day despite it all!