May 2014 Community Newsletter

Rejoice and celebrate the season of Spring. Enjoy the colors and the beauty of nature. Reach out to your friends and loved ones and share the warmth, the colors and happiness of Spring. Greetings from Ben’s Friends!

Welcome New Members!

Thanks for signing! This site is built for the patient, spouses, parents, siblings and friends. Our goal is to connect you with others so you don't feel alone or don't want to overwhelm your family.

Help yourself. Explore our community, write about your experience, ask the community. Reach out to the community anytime you need support. Have fun! Again, our warmest welcome to you.

--------------------------------------------------------------------------------------------------

IN THIS ISSUE

--------------------------------------------------------------------------------------------------

CIDP Support COMMUNITY HIGHLIGHTS

Featured Content

Featured Member

Picture of the Month

Community Stat

BEN'S FRIENDS HIGHLIGHTS OF THE MONTH

Kudos to Our Ben's Friends Facebook Team

Life With Crohn's is Coming Soon

Ben's Friends Joins the AVM TAAF Walk 2014

CIDP Support COMMUNITY HIGHLIGHTS

--------------------------------------------------------------------------------------------------

Featured Content: Pins and needles elsewhere

--------------------------------------------------------------------------------------------------

Have you ever experienced pins and needles on different part of your body? Share your story on AMA1956's discussion post.

Back to Top

--------------------------------------------------------------------------------------------------

Featured Member: Struggling

--------------------------------------------------------------------------------------------------

With symptoms started back at 2008, Struggling has been striving to live life despite her condition. She describes how she fears losing her independence on her discussion post, "Fear". Since she became a member on our community, Struggling has been certainly responsive and sociable as she shows how she can relate and connect to others. By doing so, Struggling has been actively supported by her CIDP family. See more on how she valiantly faces her struggles on her profile. Get to know her by a simple message!

Back to Top

--------------------------------------------------------------------------------------------------

Picture of the Month

--------------------------------------------------------------------------------------------------

Need some inspiration in your journey? Check out this photo mary shared for something to ponder on while your moving forwards in life.

------------------------------------------------------------------

Back to Top

--------------------------------------------------------------------------------------------------

Community Stat:

--------------------------------------------------------------------------------------------------

Number of Members as of May 1, 2014 : 1,123

Back to Top

BEN'S FRIENDS HIGHLIGHTS OF THE MONTH

--------------------------------------------------------------------------------------------------

Kudos to Our Ben's Friends Facebook Team

--------------------------------------------------------------------------------------------------

Have you seen our Facebook pages lately? Thanks to the FB team who have given our Facebook pages a new and improved look: Dancermom and Debra (AVM), Amanda (Addison's), Jane (PsA), Mandy (Chiari), Mads, Nel, and David (Erythromelalgia), and above all, our talented and dedicated Facebook Manager, Stephen Cox (PSC and Crohn's).

Back to Top

--------------------------------------------------------------------------------------------------

Life With Crohn's is Coming Soon

--------------------------------------------------------------------------------------------------

We are pleased to announce the launch of our Life With Crohn's community - a community dedicated to patients affected by Crohn's- a chronic condition that causes inflammation of the gastrointestinal tract. If you know someone who has Crohn’s Disease, please invite them to join our community and spread the word about Crohn’s.

Back to Top

--------------------------------------------------------------------------------------------------

Ben's Friends Joins the AVM TAAF Walk 2014

--------------------------------------------------------------------------------------------------

Ben's Friends Partners (Eric, Scott and Haley) along with several AVM Survivors members joined the 9th AVM-TAAF Walk2014 on May 4, 2014 in San Francisco. Over 500 participants gathered to raise awareness and funds to support TAAF's research, educational outreach, and programs. The Aneurysm and AVM Foundation (TAAF) is a 501c3 nonprofit dedicated to bettering the lives, support networks, and medical care of those affected by aneurysm and other vascular malformations of the brain.

Back to Top