Rejoice and celebrate the season of Spring. Enjoy the colors and the beauty of nature. Reach out to your friends and loved ones and share the warmth, the colors and happiness of Spring. Greetings from Ben’s Friends!
Welcome New Members!
Thanks for signing! This site is built for the patient, spouses, parents, siblings and friends. Our goal is to connect you with others so you don't feel alone or don't want to overwhelm your family.
Help yourself. Explore our community, write about your experience, ask the community. Reach out to the community anytime you need support. Have fun! Again, our warmest welcome to you.
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IN THIS ISSUE
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CMT Support COMMUNITY HIGHLIGHTS
BEN'S FRIENDS HIGHLIGHTS OF THE MONTH
Kudos to Our Ben's Friends Facebook Team
Life With Crohn's is Coming Soon
Ben's Friends Joins the AVM TAAF Walk 2014
CMT Support COMMUNITY HIGHLIGHTS
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Featured Content: Neurontin or Lyrica, which works best for you?
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Any suggestions on which works best with nerve pain? Leave a comment on SK's discussion post!
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Featured Member: Tobytylerweede
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Diagnosed at age 59, you might think that Tobytylerweede would be hopeless and uncertain. But he isn't! He remains to fight and fight the disease and is still continuing to do so as of the moment! You can see the courage lingering in him and his determination to fight the disease. He says that he can now work with the disease and life is easier. What an inspiration to all of us. Check out Tobytylerweede's profile and perhaps ask how's he doing and how he gets all his positive energy. Message him on his profile!
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Picture of the Month
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Need some inspiration in your journey? Check out this photo mary shared for something to ponder on while your moving forwards in life.
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Community Stat:
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Number of Members as of May 1, 2014 : 281
BEN'S FRIENDS HIGHLIGHTS OF THE MONTH
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Kudos to Our Ben's Friends Facebook Team
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Have you seen our Facebook pages lately? Thanks to the FB team who have given our Facebook pages a new and improved look: Dancermom and Debra (AVM), Amanda (Addison's), Jane (PsA), Mandy (Chiari), Mads, Nel, and David (Erythromelalgia), and above all, our talented and dedicated Facebook Manager, Stephen Cox (PSC and Crohn's).
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Life With Crohn's is Coming Soon
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We are pleased to announce the launch of our Life With Crohn's community - a community dedicated to patients affected by Crohn's- a chronic condition that causes inflammation of the gastrointestinal tract. If you know someone who has Crohn’s Disease, please invite them to join our community and spread the word about Crohn’s.
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Ben's Friends Joins the AVM TAAF Walk 2014
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Ben's Friends Partners (Eric, Scott and Haley) along with several AVM Survivors members joined the 9th AVM-TAAF Walk2014 on May 4, 2014 in San Francisco. Over 500 participants gathered to raise awareness and funds to support TAAF's research, educational outreach, and programs. The Aneurysm and AVM Foundation (TAAF) is a 501c3 nonprofit dedicated to bettering the lives, support networks, and medical care of those affected by aneurysm and other vascular malformations of the brain.
