Hi,
I was wondering if anyone had any info/statistics regarding pregnancy?
I've been married for 2 years and reached a 'plateau' with my treatment etc. but as I'm 36 now the clock is ticking! But I'm rather apprehensive as I know things can get 'stirred up' when pregnant.
I really need to know if I should just give up on the idea or if there's a was around it.
Any ideas???
I’d ask your neurologist
I’ve had two pregnancies since being diagnosed. My first pregnancy my CIDP symptoms disappeared during the duration of my pregnancy. I did develop blood clots due to pregnancy/IVIG combo which were treated with Lovenox and went away. i did have a significant relapse post delivery which was treated with increased IVIG to get me back to normal.
My symptoms did not disappear with my second pregnancy, but maintained normally with IVIG I was at my baseline. I just delivered and am currently dealing with another significant relapse, hoping to get back under control with increased IVIG again.
Goes to show each pregnancy is different and while post delivery can be brutal, totally worthy it! Good luck!!
The way I feel sometimes I’d hate to think of taking care of a child.
Thank for this info everyone. I have spoken to Neuro and he gave the same answer I get for everything-'We don't know enough about it'. Very helpful.
Dawn-did they say it was safe to carry on IVIG throughout the pregnancy?
Yes, IVIG is perfectLy safe while pregnant. IVIG is even sometimes used for people with recurrent miscarriages, so it may even help.
Here's a slew of info linked below: [I always like to type my searches in all caps with "+NIH" at the end -filters out most of the snake oil]:
I can only look at your situation as an expectant grandfather myself.
I wonder.Could you be one the first people on the planet to ask that question?
We are few in number and the diagnosis is relatively recent.Speaking for myself,it feels like a pioneering role on a wagon train to somewhere unknown,hopefully Seattle!
I'm really looking forward to becoming a grandfather-nervous times but no phantom pregnancy yet!
Hi,
Congratulations! That's really sweet. From the info I've been given in the UK as well, it sounds like now I have reached a 'plateau', holding down a job etc. I would be a bit mad to chance going back to square one. So, we are looking at surrogacy! Good luck with every thing. Thank you for the advice everyone!
Namaste.
Vikki_bubbles said:
Hi,
Congratulations! That's really sweet. From the info I've been given in the UK as well, it sounds like now I have reached a 'plateau', holding down a job etc. I would be a bit mad to chance going back to square one. So, we are looking at surrogacy! Good luck with every thing. Thank you for the advice everyone!