So I’ve had CIDP for 3years now and that makes me going on the age of 28. I want children but I’m not sure about how my CIDP would make my body handle pregnancy.
I think my symptoms are very mild (occasional muscle cramping/weakness, fatigue from heat).
So if there’s anyone that has had a baby after being dx with CIDP please share your experience and advice with me.
I suspect this is a question for your GP and Neurologist and perhaps a few alternate opinions as well because we are all different so the people who know you best will probably help the most.
You should also try looking for research on the subject (which will not be easy). Try searches in "Google Scholar" but expect a lot of closed doors because you will not get the full articles a lot of the time.
Otherwise - good luck.
My cidp started during pregnancy, it was a long road before being diagnosed, and my doctor had never heard of it. There is not a lot of research on this, so even my neuro was unclear. There is some evidence that it can get worse last trimester or early postpartum, which was my case. However, IVIG can be given during pregnancy too. In my case my neuro said it would likely come back pretty hard if I went through another one. Please talk to your neuro and a high risk OB.
I got pregnant shortly after being diagnosed with CIDP. Pregnancy significantly minimalized my symptoms. I continued to get IVIG and was going every 9 weeks, but probably could have gone longer. After I had my baby I had a significant relapse, which from what I read is very common. My CIDP effects came on fast and quick, so I've been having a higher frequency dose every three weeks since. Hoping to start weening off the high dose / every 3 weeks and push it out longer, but it takes some time for your body to readjust after having a baby. I also quit breastfeeding to try and limit the amount of stress on my body post childbirth.
Side note, a side effect of IVIG can be blood clots and pregnancy can also increase blood clot risks so I ended up with three in my left leg. We caught it in time and in the future I will be on blood thinners for any more pregnancies. Just something to be aware of and keep an eye out for, I didn't realize IVIG had a blot clot risk and that was increased with having a baby. I'm probably a rare case, but just wanted to give you a head's up.
Hi. I was diagnosed with CIDP in 2001 after I had my son. In 2009 I got pregnant with my daughter. It was a lil hard on my body but I received my IVIG every time I felt like I needed it while I was pregnant. Towards the end of my pregnancy I had to get my IVIG more often but I was ok with that. My baby was healthy & thats all i cared about.This disease shouldn’t keep you from having a kid or living your dreams. I try to think of it as a hiccup in life. We have the ability to bounce back. Even tho it keeps coming back. Stay positive. That’s the key to our disease. Stress hurts us. Literally Like you I have no pain. Just weakness is the arms & legs (when I am relapsing) and fatigue. I am lucky I have a good support system with my family. If you want to talk more about it my email is ■■■■■■■■■■■■■■■■■■■■■■