Recommend a Doctor or Clinic in the UK

General General CIDP Discussion
1

Dear Peter and Bee Bop,

Since you both live in the UK, I hope you can answer my question. My husband and I are moving to the UK in a year. This has been planned from before I got sick. My husband has dual citizenship. As a wife, I will only have a Visa. I don't have a clue how to find a neurologist in England who knows about CIPD. We will be living in the Wiltshire area. If the UK government finds out that I have an expensive illness, they may not even grant me my long term visa to stay. I really would not blame them. We so much wanted to spend our retired years with the rest of the family. Do you have any suggestions about what to disclose or not?

Thank you.

Jan

2

Jan, another thing that you might consider doing is search the MEMBERS section for people in England. I just did a test and the search is a bit weird. You will have to search from various terms -- United Kingdom, UK, England, Wiltshire, Somerset etc. I noticed that Martha is in Somerset, so close to Wiltshire, and Tommo is in Bath, also close. (But neither show up on the search for United Kingdom ... go figure.) Sending PMs to the UK people might get more response than a post. Good luck with this! It's an interesting question for the board, though, because you never know who will have personal experience or suggestions that might help!

3

I don't have a doctor at the moment as mine just retired.

can I suggest you contact the UK support group for this information?

http://patient.info/support/guillain-barre-syndrome-support-group

happy trails,

peter

4

there are some centers of excellence in the UK! Best of luck! http://www.gbs-cidp.org/get-support/centers-of-excellence/

5

Thank you, Kelly. I just feel guilty dumping my expensive problem on the UK. My family left two hundred years ago. My husband's family is still there. My husband is healthy and won't cost the UK much money:) Will our Counsel Tax for owning a home go toward the UK's health care? We're not sure where that goes.

Jan

6

Don't feel bad! You deserve the best care :)

JanD said:

Thank you, Kelly. I just feel guilty dumping my expensive problem on the UK. My family left two hundred years ago. My husband's family is still there. My husband is healthy and won't cost the UK much money:) Will our Counsel Tax for owning a home go toward the UK's health care? We're not sure where that goes.

Jan

7

Kelly, You don't know what that means to me!

Jan

Kelly said:

Don't feel bad! You deserve the best care :)

JanD said:

Thank you, Kelly. I just feel guilty dumping my expensive problem on the UK. My family left two hundred years ago. My husband's family is still there. My husband is healthy and won't cost the UK much money:) Will our Counsel Tax for owning a home go toward the UK's health care? We're not sure where that goes.

Jan

8



JanD said:

Kelly, You don't know what that means to me!

Jan

Kelly said:

Don't feel bad! You deserve the best care :)

JanD said:

Thank you, Kelly. I just feel guilty dumping my expensive problem on the UK. My family left two hundred years ago. My husband's family is still there. My husband is healthy and won't cost the UK much money:) Will our Counsel Tax for owning a home go toward the UK's health care? We're not sure where that goes.

Jan

9

Try dR. Thomas Britton if you have found anyone already. He treated me about a year ago and I am recovered from my GBS. Almost.