Scalp sores

Has anyone else with CIDP experienced scalp sores? With the initial load, I got these on my scalp, hands, and arms. Since then, I have taken steroids for 3 days around each infusion. For the past 3 months, I have had them all over my scalp again. I've tried going to 4 days of steroids around each infusion, but this doesn't seem to help. I was just wondering if anyone else had experienced this, and what they have done to help it.

DehydratedCreamerI get excema like patches on my hands and around my neck where collar rubs and hold things and bumps on arms. Dr. said It was allergic reaction to the Gamunex-C so I take Benadryl at different Intervals. It took several Months to work out best schedule. Also use otc Hydrocortisone Cream when hands too dehydrated looking. Hope this helps.

Thank you, Suzeque. I've been taking Benadryl around the clock with each infusion also. These are raised sores on the crown of my head, that keep bleeding. Sounds gross....but don't know what to do about it.

I have had problems like this with each infusion. The severity seems to be tied to exposure to sunlight. I have just come under the care of some new docs and they have had experences with opportunistic infections, and this may be recurrent shingles outbreaks. My outbreaks were on my scalp and would also follow the trigeminal nerve. Just food for thought.

Thank you, Wzamedic. I haven't thought about shingles...something to think about. I'm doing another infusion this weekend. I'm increasing the steroids and Benadryl to see what it does. I have read online about this type of thing happening with auto immune disorders so I feel like it has to be tied to the IVIG.

I broke out in terrible sores on my first dose (and still have minor outbreaks) Runs from the tip of my head to my toes. Ankles and back are worse. I have to use (Australian) 10 Elocon 0.1% ointment once a day. it helps.