Has anyone with CIDP had problems with trigger finger and fingers curling with difficulty straightening on non-dominant hand? I have been referred to a hand surgeon.
Thank you!
Dennis
YES! Mine is on both hands, but my dominant one is very bad. I have asked if there is a correlation between CIDP and trigger finger and have been told no. I have spoken to other people with CIDP that experience it also. I have been to a hand surgeon for both of my thumbs. He gave me a cortisone shot each time. It helped tremendously in less than a week. It wasn’t a permanent fix. I am going to go see him again very soon. Please let me know what you find out. In the mean time, I wear a brace that hold my thumb straight. It saves me a lot of pain and curling.
Yes I have the same thing on my dominant hand. I’ve been told that it has nothing to do with CIDP. So I just deal…
Some days it’s very uncomfortable. Other I don’t think about it.
Thank you! My dominant hand has some curling, but I can manually straighten them on that hand. I’ll let you know what I find out when I see the hand surgeon.
Yes, my finger hasn’t straighten out in years. My Mom had the surgery and told me it was hereditary.
I have it in both hands. I was told it’s tendinitis.
My cousin had it and she had surgery to correct it on both hands. I’m just dealing with it now and have been for about three years. I have CIDP, and maybe CMT. I’ve had IVIG, but it didn’t seem to help at all. I had three treatments over three months.
That was for CIDP, not for tendinitis.
After a diag of GBS I couldn’t straighten my fingers for 18 months - the hand dr said ‘no extrinsic extensors’ - and trigger finger in my thumbs. The cortisone shot worked wonders for the trigger finger.
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yeah mate I have non voluntary movements in both trigger fingers always at the worst moments when I’m trying to paint a fine straight line and my fingers make the brush go all wonky. gives me the@#$$
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Just got back from my doctor’s appt. They gave me two cortisone shots and I go back in two weeks. Both hands are affected.
Thank you for your replies.
Dennis
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Yes - but not trigger finger. I can’t close the middle finger on my non-dominant hand and I can’t close the ring finger on dominant hand. Neuro says its related to the neuropathy. Cortisone did not help. Had appt w hand surgeon but was cancelled due to covid. Will be ointeresting to see if neuro and ortho agree.
Yes min right hand was like a claw came back about 90 percent. Minor deficit in my index finger and Alner and median nerve Going up the for arm. I went to hand management Therapy they provided me with light exercise and ways to strengthen. I hope this helps good luck managing with CIDP.
Yes, I have this problem for many years now, plus loosing muscles plus my eyes popping out dangerously and the socket need operation, I have loose all the veins through the Immunoglobulin and I have porta cath. I move about the house with a hoist.
The cortisone shot didn’t work, so hand surgery is the next step. Hopefully that will work.
Sorry about that. If it’s the trigger finger release, it’s a very straight forward procedure with a short recovery. The worst part is the bandaging that needs to stay dry for a few days or so. I had both thumbs done, and I know that my mom has had a few fingers done.
Sharon from ModSupport
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Yes I do an that is also my hand that has pretty much no feeling in it at all. When first happened I was surprised because my other hand is not numb just tingly. My dr. said CIDP will do that in cases that it has been around for a while. This is not Carpal Tunnel, nor my arthritis it is definitely nerve damage. Keep us updated.
Susan Schranz
So sorry to hear that! Please keep us informed. My cortisone shot only lasted six months and I just went back for another. It has helped tremendously, but not as well as the first time. I hope the surgery works for you.
I am curious to know when you started your IVIG was it with just one treatment? I was given my first treatment everyday for a week. I understood thats how it starts being given and the monthly treatments are for ongoing treatment. Without my treatment I am about 4 months from being back in a wheelchair. The IVIG also takes care of all my other symptoms. As my long time physician says every time a patient receives ‘liquid gold’ it is like opening a new bag of tricks or as Forest Gump so eloquently put it," …,you just never know what your going to get.’
I was diagnosed with CIDP in early 2014, and I believe in the beginning I was on a loading dose like you and then had been getting IVIG treatments once every other week for 5 years. There was an IVIG shortage in New Hampshire beginning June 2019, and I went 5 months without it and declined quickly. I’ve been on a twice-a-week IVIG schedule for 2 weeks, and then none for two weeks, in that pattern, since November (four treatments a month) until things improve.
I found out today (when I saw the hand surgeon instead of the PA) that it’s not trigger finger after all, but it’s CIDP that is the culprit of my hand problems. All of my fingers on both hands are curled under now, but the worst one cannot be straightened out at all. The doctor is sending me to physical therapy to have them splinted to try to straighten them out. I think it’s the 10 and 20-pound hand weights I was using to strengthen my arms that did it.
Best regards,
Dennis
I went from ALS, CIDP diagnoses to MMN. The positive diagnoses is MMN. You should look it up and pay attention to the images of people with MMN curling fingers. MMA looks very much like ALS. IvIG treats both CIDP & MMN, only the doses can be different. Good luck and stop worrying.