I am new to this Support Group, so this is my first discussion. I was diagnosed with GBS last November, was in the hospital 1 month, no breathing problems. My question is: is there any link at all with Fibromyalgia?(to be more susceptible to GBS) I have had the fibro for about 10 years. I was told while in the hospital there was no link, but since both ailments are fairly new, (aren't they?) and not enough research done on the fibro yet, I thought it was worth a shot,to ask, does one has any info on this? I was doing OT, ST, and PT, but after about a month of being discharged from the hospital, my insurance company would not cover any more therapy, so I have been on my own, doing excercises myself. (and sometimes I don't do anything, too tired) It's harder when there is no one there to "push" you to do them. And with the fibro, plus a bulging disc in my neck, I have a good amount of pain. I take gabapentin 3 times a day..(300 mg) Any info on the fibro/gbs possible connection would be appreciated.
Hi : welcome to the group : I never heard of this term Fibromyalgia :: till I searched the net for it : and what I found was exactly the symptom I going through : all the ailments described in it I am ado facing : though my doctor did not say this term
:: he only says my symptoms are post GBS : and will take its Own course of time to recover : it’s been 20 months since I was diagnosed with GBS :; life has not been the same since then : I wait patiently each day for the symptoms to get less : but so far nothing ; I’m still hopeful : waiting for one bright morning which will bring my old self to me : that day will be the best gift this universe can give me :; wish you all the best for a fast recovery .; god bless
I'm not sure about a link with previous fibromyalgia and GBS. I never had symptoms of fibromyalgia before my case of possible mild GBS. I have definitely had symptoms at different times since then. Most of the nerves in my body seem to have been hit by this so it hasn't felt very mild. Is your fibromyalgia much worse since being diagnosed with GBS?
I'm not sure about a link with previous fibromyalgia and GBS. I never had symptoms of fibromyalgia before my case of possible mild GBS. I have definitely had symptoms at different times since then. Most of the nerves in my body seem to have been hit by this so it hasn't felt very mild. Is your fibromyalgia much worse since being diagnosed with GBS?
Try swimming lessons, or just join a gym were you can swim. The good thing about lessons is it helps to know you’re expected at the lesson so you’ll make an effort to be there. Swimming a is a fantastic exercise and it will help both ailments. It will help with overall strength. Just try short sessions. 30 minutes, not more. My son started swimming before he got diagnosed with subacute GBS. It was the only thing he could actually do. He was 9 years old at the time, so I put him in Aqua Tots were the pool is shallow and the lessons are short. By the time they finally did the EMG NVC tests and diagnosed him (we had to wait a month to take that test) he was already doing a bit better. He’s still swimming three times a week. We will now go to the YMCA since it’s much cheaper. Swimming lessons can be expensive but give it a try. My mother in law has fibromyalgia and feels much better after swimming.
I feel like it is worse, yes. It's like the muscle achey-ness has increased, especially in my neck and shoulder and sometimes, my back. But it's hard to tell because I had the bulging disc in my neck, before being diagnosed with GBS. Add the extreme tiredness from GBS, and that's me! I was cut short on my OT and PT treatment, (because insurance wouldn't pay) and I feel like that contributes, as well. I try to do my excercises, every day, but don't always do them.
Hi : welcome to the group : I never heard of this term Fibromyalgia :: till I searched the net for it : and what I found was exactly the symptom I going through : all the ailments described in it I am ado facing : though my doctor did not say this term :: he only says my symptoms are post GBS : and will take its Own course of time to recover : it's been 20 months since I was diagnosed with GBS :; life has not been the same since then : I wait patiently each day for the symptoms to get less : but so far nothing ; I'm still hopeful : waiting for one bright morning which will bring my old self to me : that day will be the best gift this universe can give me :; wish you all the best for a fast recovery .; god bless
I know, since GBS and Fibromyalgia are nerve related, I thought there might be a connection. I am so sorry to hear your symptoms haven't improved..do you do any regular exercise? Keep hoping, that is a good thing, and an important thing, to have a positive attitude. Keep it up! And good luck to you.
Try swimming lessons, or just join a gym were you can swim. The good thing about lessons is it helps to know you're expected at the lesson so you'll make an effort to be there. Swimming a is a fantastic exercise and it will help both ailments. It will help with overall strength. Just try short sessions. 30 minutes, not more. My son started swimming before he got diagnosed with subacute GBS. It was the only thing he could actually do. He was 9 years old at the time, so I put him in Aqua Tots were the pool is shallow and the lessons are short. By the time they finally did the EMG NVC tests and diagnosed him (we had to wait a month to take that test) he was already doing a bit better. He's still swimming three times a week. We will now go to the YMCA since it's much cheaper. Swimming lessons can be expensive but give it a try. My mother in law has fibromyalgia and feels much better after swimming.
Thanks, yes, I have heard any type of swimming/water aerobics help. I have looked into it, and there isn't really anything in my area. I may consider joining the YMCA in the closest bigger city to me, thank you for that suggestion! Hope your son is doing better! I can't imagine being a parent of someone with this syndrome. That would be very hard.
Kat5616, I’m not sure about that linkage; Shelby, I had that problem but it cleared up pretty quickly after I was given the IVIG. Are you newly diagnosed?
i have it for 10 weeks-i had the IVIG and got better all over but for my hands-the doc tells me my gbs atypical gbs as it has affected my core nerves not the sheath.
Gina said:
Kat5616, I'm not sure about that linkage; Shelby, I had that problem but it cleared up pretty quickly after I was given the IVIG. Are you newly diagnosed?
i have it for 10 weeks-i had the IVIG and got better all over but for my hands-the doc tells me my gbs atypical gbs as it has affected my core nerves not the sheath.
Gina said:
Kat5616, I'm not sure about that linkage; Shelby, I had that problem but it cleared up pretty quickly after I was given the IVIG. Are you newly diagnosed?
Hi, I too am new to the support group. I can't answer your question re: Fibromyalgia but I too have wondered about that. I didn't have any breathing problems, I was diagnosed in 2005, but the GBS left me with pain in my feet, sometimes acute and sometimes just bothersome. I take Lyrica, I did take Gabapentin for a while but it didn't seem to help me. I also get tired, in addition to my having GBS I am my husband's caretaker so I have to push myself. He was hospitalized with a very severe Staph infection that was in his spine and he is still trying to get himself back to where he used to be.
So good luck to you, maybe sometime someone will come up with a cure for GBS ???????