After spinal tap yesterday its wait and see now for Dx. Nero said she thought it was Cidp after Nerve condution test caught me off guard. Ataxia has slowed way down after comming off anti depressant. Still pain in feet legs and low back with bad fatuige. In bad for half a day usually from fatuige. Now its wait and see for spinal tap results. Thanks for the support.
Also spinal fluid was clear does this mean no raised proteins? So confused ugh.
Best of luck to you Greg. It seems like the more I learn, the less I know. Everyone is different. Just do what's best for you, and don't overdo it. I had an mri and a spinal tap after my 2nd nerve test First one was for carpal tunnel, second one was to verify cidp. or so I am told. I too was recently diagnosed. I have had 4 injections; 3 the first weekend and then 1 last weekend. I get this weekend off and they hit me again next weekend. I notice a lot of fatigue all the time; less than 1/2 a day of my desk job and daily naps to cope. Also have a one and a four year old. Fortunately everyone including boss and wife are very understanding of the situation.
Yes Greg. Atleast the way I understand it clear spinal or negative means no raise in proteins. I believe they are checking to make sure you don't have ms or lou gehrigs disease. Atleast that's how I understand it. But, always ask the doc if you have any questions. Thats what they get paid for. :)
Greg Thomas said:
Also spinal fluid was clear does this mean no raised proteins? So confused ugh.
Thank you!