hello,just wondering if any members are on social security disability from cidp? i found out in may i have thisCIDP and i filed for ssd almost a year ago with case still pending. but now that i have been diagnosed and they now have all the paper work at the ss office things will speed up faster.i had carpal tunnel surgery on left wrist in august and just had ulnar nerve surgery on left elbow,i guess this is all related to CIDP.i have not worked in two years cause of this,i use to drive tractor trailer for 30 years i'm 58 years old and can not do any other work even if i wanted to.just hoping i can get approved soon cause i'm just living off of my wife's pension check and we are getting close to losing our house. sorry if i'm carrying on like this but any feed back i would appreciate......
I receive disability because of CIDP. I had to wait 6 months from the time I applied until I received the 1st check. Just make sure everything is well documented from a medical standpoint.
Chris.thanks for the input its good to know and glad you got what you deserve ,i know there is a five month grace period so you are really lucky you got it that quick from what i read.and they will also owe me retro once i get approved. and all the proper paper work is in now cause i got copy's of the two emg mri spinal tap and i faxed it to ss office so they finally have all the paper trails so once again wait, wait, wait.........but at least it looks more promising and thanks again Cris
Chris said:
I receive disability because of CIDP. I had to wait 6 months from the time I applied until I received the 1st check. Just make sure everything is well documented from a medical standpoint.
Try the form attached, fax or mail to your soc sec representative who is handling your case, keep a blank one and keep a copy for your records. I got this certain form from a woman who has CIDP and also worked for social security. If soc sec rep can't help you, GET A LAWYER!!!
My husband is on disability.. He was diagnosed in 2005 with cidp, lost his job in 2008, and got on disability within 9 months.He is now only 45 years old.
thanks for the reply and sorry about your husband,any age is too young for this disease.i have been out of work since 2010 i fell off my truck and cracked some ribs and messed up my back,but do not know if it was my cause for this disease but i hope to be on ssd soon..........thank you lucy said:
My husband is on disability.. He was diagnosed in 2005 with cidp, lost his job in 2008, and got on disability within 9 months.He is now only 45 years old.
thanks i do have a lawyer,maybe thats the problem....lol
Wendy said:
Try the form attached, fax or mail to your soc sec representative who is handling your case, keep a blank one and keep a copy for your records. I got this certain form from a woman who has CIDP and also worked for social security. If soc sec rep can't help you, GET A LAWYER!!!
I applied and since it is an autoimmune disease it is automatic SSDI qualified. I am 53 and have been unable to work since 2010, I hired a lawyer, sent in some authorization paperwork and "Bam" I was accepted. Never left the house. Never met the attorney or the SSDI people. All depends on who you hire I guess. GOOD LUCK!
thanks for your reply Spelcheker, yes you are about the 4th person who has told me that with CIDP it was a slam dunk for ssdi.......and from what i read on there bluebook guidelines i fall in that category, it's just been so frustrated that knowing i'm qualified that i'm not on it yet but i know they can only yank my chain for so long then they will have to accept me its just the waiting game that sucks
Spelcheker said:
I applied and since it is an autoimmune disease it is automatic SSDI qualified. I am 53 and have been unable to work since 2010, I hired a lawyer, sent in some authorization paperwork and "Bam" I was accepted. Never left the house. Never met the attorney or the SSDI people. All depends on who you hire I guess. GOOD LUCK!
Hi I am not sure what state you are in - I am in California and the SS office told me that it wold be four to six months. Have they issues a denial? Did they tell you why it is pending? They should be able to tel you why or what is holding up your claim. Usually a claim should take 4 to 6 months and there are people that can help you out with this.
Hi,
God Bless all of you who have gotten what I have read as what you have called “slam dunk” approvals, I am thrilled for you!
I have been fighting since 2004 & was finally approved in February…yes, that is a long time! I have just about every system in my body affected & have almost lost my life numerous times (as many of you have). Even though SSD tells me I deserved it, I was told in my District they tend to deny 90+% of claims in the hopes people will give up & go away. Horrible!
Like everyone else, I’d much rather be working than be sick, in pain, making 30% of my working wage & not even being able to afford things I used to without a problem, including all my medications & heat in the winter season eg. I was just diagnosed with a mass on my lung when I went to the ER for an asthma attack (as my plan doesn’t cover any of my respiratory meds), & I am cringing to even get this further investigated due to the potential for more meds…lol, but I will.
Though I digressed for a moment, my point is this, KEEP FIGHTING for your ssdi, keep on top of your atty if you have one, & most importantly be sure to keep a file of phone calls/physician reports, hospital records, lab reports, any testing, dates, times, places you went for treatments as you will need this down the road for your claim. And if you keep a log, it will be much easier & less frustrating to pull all your records together if the need arises. It also helps your docs keep track of everything you’ve been going through (if you travel to a different city to see a specialist, but may have treatments @ home or elsewhere & perhaps even travel & occasionally be hospitalized in different locales).
I hope some of this info was helpful for someone, as it was not my intention to discourage or upset anyone. Heck, if I wouldn’t let them push me under the carpet after so long (& am still being harassed by my disability carrier to prove I’m disabled every month…lol), I’m sure you can do it with THIS wonderful support system of friends here! KEEP BELIEVING YOU WILL BEAT CIDP, IT WON’T BEAT YOU!
I am sorry about the problems your having with SSD but please don't give up...I did my own on line after oxygen was deliver to my home one night..yes they said no the first time...I hired a lawyer who got my disabilty for me within 6months. But at that time I ddin't know I had neuropathy yet. I got my disability under my copd. little did I know I had neuropathy going on yet...not until the next year. I still say keep on going no matter which illnesses you have don't give up.
David - make sure well documented by your doctor and it was my understanding that if it falls under an autoimmune (sorry spelling) disease it should be automatic -they should have picked up long ago - they should at the very leased tell you what is missing. I hope this helps
Who would think - that when you are your lowest point / lost in a (rare) disease that so so many of us get knocked back/ rejected for (any) support. I was blown away when advised I needed a lawyer.
I decided to keep the little energy I had for my healing daily plan - my doctors encouraged me not to give up - thats what the system is for - too support IF you need it. Yes as many have shared, paper trails of who said what, medical reports, references number all essential.
I was granted support at my 18month mark - its now 2 years. I feel more stable and with the help of friends ( no lawyers) I decided to appeal for back payment - all the paperwork I'd collated provided evidence along with a narrative of my journey - I wait.
At first I navigated this journey alone - but got SO confused. A friend offered to be my patient advocate - attending ALL my appointments - keeping a diary and translating what was actually said in each meeting. Its been a refreshing change - we do prep prior to seeing the neuro / make decisions after - review monthly results. Truly a wonderful gift.
I recommend a 'patient advocate'. The journey is long, so maybe a change of advocate is necessary every year ?
A process to navigate the systems to support us - would be wonderful. ( so we don't have to over think and stress )
I live in Ontario Canada and see the commercials from the states for this type of lawyer everyday on TV, and I really find it hard to believe that they take 25-30% of a persons entitlement for simple paperwork, something that I did (even my own) for over 20 years because people were in need and I was happy to get a "Thank You". Grant it, 80% were turned down on their first application, but upon appeal they were granted and I can proudly say in all that time I never lost an appeal. Here I was working with two tiers of government, both federal and provincial,which in some cases can be more complicated and in others straight forward. The idea of a patient advocate up here wants to make me gag because here they're paid by the government, the same place an appeal is assessed, where a possible conflict may exist. I hope it's different in the U.S. Gary
I hired a TV Social Security Specialty Lawyer and yes they do get paid a hefty sum but it did not reduce the amount of my back settlement. In the U.S. the laws allow for representation and the expense thereof, as long as the expense is justified and reasonable and most if not all these attorneys peg it to the last dime. The cost for the attorney is paid for by the Social Security Administration, I did not lose any part of my back pay nor did I pay a dime out of my pocket. There is no "cost" to the patient unless you count the taxes you paid into Social Security, I don't know why anyone would go through the hassle of dealing with the government without the help of a professional. I made a phone call to a lawyer seen on TV, discussed my situation, they sent me a large envelope with documents to sign and send back and 6 weeks later I was contacted by SSDI and told I was accepted.
If the lawyer you are dealing with wants money from your settlement then I would find another lawyer.