Before I left for vacation last week, I felt like the active demyelination triggered by my December surgery had once again stopped. I had a couple 2 week IVIG cycles (vs. 4) that assisted, but my overall strength/endurance seemed still very taxed from the relapse damage. I couldn't walk far- couldn't drive far. I was amazed at the amount of walking I could push myself to do while on a 5 day vacation to the beach. I can not believe what stress does to my symptoms. Has anyone experienced an extreme turnaround with this type of rest? Is it the vitamin D? Too bad, I can't get an RX for vacation LOL or move to someplace tropical :(
Lol I wish I too could move someplace tropical! Stress is a killer and in my case like yours the more stress I have the faster my symptoms come back. I have a vacation planned in May so I shall see if I notice any improvement after that.
It's great to have something to look forward to. Hopefully, you see improvement too. Vacation memories help a bit; they bring me back to the happy place. Pre-vacation, I initiated some efforts (job restructure request to cut my huge commute & allow me to work primarily remote). That was hard to admit that I needed help. I've received no decision yet, but I am grateful it's even being considered! Stress surrounds us and I definitely haven't focused on better coping strategies in my past. I am more convinced of the necessity.
I have to chime in and say this is truth. Stress inflames CIDP symptoms. Like Roland and dac, I am trying to navigate my full time job, and escalating symptoms from my CIDP. As I become stressed, I can literally feel my legs grow weaker, my joints ache more, and my energy fade. I hope that I can continue to manage both, work and my health, but stress definitely makes it more challenging.
I have to completely agree. My nuero said that my eye and facial twitching, and feeling of not in-taking as much air is not CIDP related but most likely stress..He asked me if I was stressed...Seriously I wanted to say duh I'm in severe pain to point of tears trying to hold down a full time job of course my body is stressed. I guess it's a vicious cycle.
Making lemonade said:
I have to chime in and say this is truth. Stress inflames CIDP symptoms. Like Roland and dac, I am trying to navigate my full time job, and escalating symptoms from my CIDP. As I become stressed, I can literally feel my legs grow weaker, my joints ache more, and my energy fade. I hope that I can continue to manage both, work and my health, but stress definitely makes it more challenging.