I just returned from my eye doc. Was told that my eye pressure is up and optic nerve is enlarged. This has never been there before (I am in the midst of a major flare). Has anyone every experienced this. Is this part of CIDP or just a coincidence?
No I haven't heard of that myself, but I am still learning...
I have found a site that I been reading about how peripheral neuropathies associated with primary Gougerot-Sjogren syndrome.
when reading this I found where they had three people with this rare forms of peripheral neuropathy related to Sjogren's syndrome and analiyze their clinical course and response to therapy. There were a case of mononeuropathy mltiplex (MM), a case of recurrent cranial polyneuropathy (RCP) and a case of chronic inflammatory demyelinating poyradiculoneuropathy (CIDP). I don't want to write the whole thing out try putting the web page down here but it didn't work. But when you said what was happening with your eyes I thought about this aritcal that I just read. With Sjogren syndrome you can have dry eyes and cause problems.....just a thought how they discover CIDP and Sjgrens (SS) together.....maybe ask your doctor about it?
I understand it isn't saying Glaucuma......by the way I had Glaucuma the worse type you can get...close angle narrow Glaucuma....they drill holes in my eyes to let the pressure out so to speak...and so I won't go blind.
I only was looking at Sjogrens because I have gotten tested for that and I haven't found out yet mostly because my apt isn't until June. I know way long to wait. But I also have the Sensory Polyneuropathy so far....and that might be changing....long story also. Another thing I know Sjgrens takes a long time to diagnose at least they say this 7 years sometimes. As bad as CIDP and others....I guess.
Wishing you lots of good luck your way.
bee
Thanks for the good info. I have been tested for Sjogrens many times, all negative (although, I am constantly dealing with dry mouth and eyes). Thank you for answering!
Yvonne
ruthie4bearz said:
No I haven't heard of that myself, but I am still learning...
I have found a site that I been reading about how peripheral neuropathies associated with primary Gougerot-Sjogren syndrome.
when reading this I found where they had three people with this rare forms of peripheral neuropathy related to Sjogren's syndrome and analiyze their clinical course and response to therapy. There were a case of mononeuropathy mltiplex (MM), a case of recurrent cranial polyneuropathy (RCP) and a case of chronic inflammatory demyelinating poyradiculoneuropathy (CIDP). I don't want to write the whole thing out try putting the web page down here but it didn't work. But when you said what was happening with your eyes I thought about this aritcal that I just read. With Sjogren syndrome you can have dry eyes and cause problems.....just a thought how they discover CIDP and Sjgrens (SS) together.....maybe ask your doctor about it?
I understand it isn't saying Glaucuma......by the way I had Glaucuma the worse type you can get...close angle narrow Glaucuma....they drill holes in my eyes to let the pressure out so to speak...and so I won't go blind.
I only was looking at Sjogrens because I have gotten tested for that and I haven't found out yet mostly because my apt isn't until June. I know way long to wait. But I also have the Sensory Polyneuropathy so far....and that might be changing....long story also. Another thing I know Sjgrens takes a long time to diagnose at least they say this 7 years sometimes. As bad as CIDP and others....I guess.
Wishing you lots of good luck your way.
bee
I was diagnosed with CIDP in June 2011, at around this time I noticed that someone had turned up the contrast in my eyes and that the world seemed very bright! A few months later it was diagnosed as Glaucoma, but only because I went to the opticians and then a separate hospital department - I do not know whether it was a coincidence for me (as I have also been diagnosed with Sarcoidosis and Diabetes!), but I have found a small number of other people with GBS/CIDP do also have Glaucoma. Mine has been treated with drops and seems better now, but I am having it monitored closely and it may have been linked with UVItus??
If you want to read my whole story it is at: http://mycidp.blogspot.com